The Thalamic Glioma Registry is a key part of the Children's Brain Tumor Project at the Weill Cornell Pediatric Brain and Spine Center. The registry will:
- Establish a central database of thalamic glioma cases worldwide, aggregating data on medical history, diagnostics, genomics, treatments and outcomes
- Make available any discovery or any genetic information we uncover about thalamic gliomas through open-source sharing
- Accept and incorporate data from other researchers into our cloud-based registry, making it available to all partners
- Consult with other physicians and researchers worldwide about individual cases of thalamic gliomas diagnosed in other hospitals
- Provide a central place for patients and families confronting the diagnosis to find support and comfort from others
- Participate in tissue banking so we can collect and share tumor samples to study. (See: The Legacy Donation Program.)
Weill Cornell Pediatric Brain and Spine Center researchers have established relationships with other research and clinical centers across the country and around the world in order to share data as widely as possible. See Who Is Eligible?
Click here to make a donation to support the Thalamic Glioma Registry, and keep it free for all patients!